US Code

Public Law 119-73 (01/23/2026)

42 U.S.C. § 285s

Purpose of Institute

(a)

General purpose

The general purpose of the National Human Genome Research Institute (in this subpart referred to as the “Institute”) is to characterize the structure and function of the human genome, including the mapping and sequencing of individual genes. Such purpose includes—
(1)
planning and coordinating the research goal of the genome project;
(2)
reviewing and funding research proposals;
(3)
developing training programs;
(4)
coordinating international genome research;
(5)
communicating advances in genome science to the public; and
(6)
reviewing and funding proposals to address the ethical and legal issues associated with the genome project (including legal issues regarding patents).
(b)

Research training

The Director of the Institute may conduct and support research training—
(1)
section 288 of this title for which fellowship support is not provided under ; and
(2)
that is not residency training of physicians or other health professionals.
(c)

Amount available for ethical and legal issues

(1)
Except as provided in paragraph (2), of the amounts appropriated to carry out subsection (a) for a fiscal year, the Director of the Institute shall make available not less than 5 percent for carrying out paragraph (6) of such subsection.
(2)
With respect to providing funds under subsection (a)(6) for proposals to address the ethical issues associated with the genome project, paragraph (1) shall not apply for a fiscal year if the Director of the Institute certifies to the Committee on Energy and Commerce of the House of Representatives, and to the Committee on Labor and Human Resources of the Senate, that the Director has determined that an insufficient number of such proposals meet the applicable requirements of sections 289 and 289a of this title.

July 1, 1944, ch. 373Pub. L. 103–43, title XV, § 1521(2)107 Stat. 180Pub. L. 109–482, title I, § 101(c)(4)120 Stat. 3681(, title IV, § 464z–1, formerly § 485B, as added , , ; renumbered § 464z–1 and amended , , .)

Editorial Notes

Codification

section 287c of this titlePub. L. 109–482Section was formerly classified to prior to renumbering by .

Amendments

Pub. L. 109–482, § 101(c)(4)(C)2007—, substituted “Institute” for “Center” wherever appearing in section catchline and text.

Pub. L. 109–482, § 101(c)(4)(B)Subsec. (a). , substituted “National Human Genome Research Institute” for “National Center for Human Genome Research” in introductory provisions.

Statutory Notes and Related Subsidiaries

Change of Name

Committee on Labor and Human Resources of Senate changed to Committee on Health, Education, Labor, and Pensions of Senate by Senate Resolution No. 20, One Hundred Sixth Congress, .

section 1(a) of Pub. L. 104–14section 21 of Title 2Committee on Energy and Commerce of House of Representatives treated as referring to Committee on Commerce of House of Representatives by , set out as a note preceding , The Congress. Committee on Commerce of House of Representatives changed to Committee on Energy and Commerce of House of Representatives, and jurisdiction over matters relating to securities and exchanges and insurance generally transferred to Committee on Financial Services of House of Representatives by House Resolution No. 5, One Hundred Seventh Congress, .

Effective Date of 2007 Amendment

Pub. L. 109–482section 109 of Pub. L. 109–482section 281 of this titleAmendment by applicable only with respect to amounts appropriated for fiscal year 2007 or subsequent fiscal years, see , set out as a note under .